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August 2014

Hannibal ad Portas

Well, maybe not Hannibal, but the risk of tipping the balance of healthcare towards private institutions and thereby increasing social rift in the Nordics, is probably one of the ugliest of enemies to our welfare-based societies.

I recently elaborated on why the Nordics should invest in digital health infrastructure. In that post I briefly touched on the fact that large technology companies are already taking steps towards building digital health platforms of their own design.

The healthcare system is an area in which the government has always upheld strict control. Apart from disagreements regarding minor details, I would say that most believe the healthcare system to function rather well. Yes, it needs some minor nudging and improvements at times, but overall it is quite safe and effective. Even as the government plays the balancing competitor to private interests in other markets, private companies are the challengers of tradition-bound healthcare institutions:

As I’ve stated before, there isn’t any hard scientific evidence for digital health improving treatment, but there is no denying the fact that the public has a great demand for easier and more convenient access to healthcare. Some doctors are hesitant in fear of increased medicalization and additionally burdening an already overstretched healthcare staff. In my own—utterly unscientific—experience, patients who have digital access to my practice have a tendency towards occupying less off my time.

Only time and experience will tell us how the digitalization of medicine will play out, but I’m convinced that the established healthcare institutions cannot afford to stay on the sidelines, while private organizations shape the future of Nordic healthcare.

Boosting digital health innovation in Norway - an introductory guide

With Snowden’s NSA revelations, it has become clear that drastic steps need to be taking to safe guard patient health data. The Norwegian government was foresighted when it established The Norwegian Health Network (NHN), through which all electronic healthcare messages are conveyed. NHN’s main focus has been security. This has resulted in a monopolized network, which is difficult and expensive to connect to. Innovation is stymied and limited to a small number of companies. Because of the rigidity of NHN, the system’s culture implicitly hampers innovation. Once companies have been certified by NHN, they use lock-in mechanisms to bind their customers to expensive subscription models. The status-quo becomes profitable, and must be maintained. A more open system will increase competition, and enable independent developers to break into the market. In order to disrupt this status-quo, these developers will need to bring their A-game. In turn, healthcare providers and patients will profit.

The government should continue to focus on developing the critical back-end systems. At the same time, they should adopt the strategies of large technology firms such as Apple, Google, and Microsoft, to sway independent apps and software developers to the platform. Strategies could include, but not be limited to:

APIs

Developing APIs which ease integrating healthcare data and advanced functionalities into apps is a must. This has proven to be a viable strategy for software companies wishing to expand their market reach, empower users, and improve their user experience. In many cases, combining several APIs can result in synergistic effects, such as the If This Then That platform. Governments alone can collect massive amounts of data, but the endeavor becomes meaningless if citizens have no easy way to access the data.

Certified apps

In spite of thousands of available health related smartphone apps, users really do not have any way of knowing whether a given app is medically safe or useful. The FDA is developing regulations for smartphone apps, but the European Union is straggling. The NHS of UK has taken it upon themselves to curate a medical app library. Apps are reviewed in order to ensure that they:

The idea is brilliant, albeit the implementation is subpar. With an improved design, better highlighting of apps, better search, and a higher level of user engagement Certified App Libraries could drive medical app adoption and help increase the revenue of independent developers. This could be the enticement independent developers need to finally disrupt healthcare IT.

Why we should invest in digital health infrastructure

I just wrote a dismissive blog post about the British telehealth study, concluding that governments are better off investing in software infrastructure which enables developers to build mHealth and digital health applications. I didn’t comment on the fact that telehealth can be an effective way to treat patients in remote locations, or simply remove the need for patients to physically travel to a doctor’s office. Lots of time and gasoline can be saved by this simple fact. Of course, one doesn’t need old telehealth units for this. A smartphone with a decent front facing camera and a wireless connection will suffice. With that said, let me elaborate more on why I believe medical apps are the future of medicine.

Can’t stand in the way of progress

With the increasing number of health related apps and wearables, it is difficult to argue against the fact that consumers will use smartphone apps. A plethora of 7 minute workout apps are downloaded by users who wish to become more active, it is possible to measure heart rate and blood oxygen saturation simply by using a smartphone camera, it is possible to conduct a complete smartphone physical, and smartphone connected activity trackers are selling well. Apple, Google, and Samsung have already deployed health platforms and are partnering with health care facilities in order to expedite digital health through consumer devices. The writing is on the wall: Digital health through consumer devices is here to stay. Unfortunately, the entire field is a tangled mess, and it is difficult for consumers to assess whether an app can help them or potentially harm them.

Taking care of the grunt work

I’m not able to point to a singular study which shows that medical apps and wearables keep people healthy, so lets not use that as an argument for large scale adoption of medical apps. Instead, lets focus on better usability and user satisfaction. Smartphone apps are great for data gathering, and diabetes, blood pressure, or headache diary apps can easily replace the pen-and-paper diaries used today. Doctors can glance at a data chart on a smartphone to get a general idea of the patient’s blood glucose fluctuations. This saves a lot of time for both patient and doctor. Time, which could be spent towards better treatment of the patient. I’m not arguing that everyone should use medical apps all the time—but imagine if a doctor could prescribe an app instead of medication. There wouldn’t be any pharmacological side-effects, and the app data could help spark a conversation and understanding of the patients situation. The potential is huge.

I believe some doctors are opposed to medical apps out of a fear of becoming obsolete, or losing their medical footing. In reality, medical apps will never replace doctors. They are meant to alleviate some of the grunt work, and help doctors connect with patients on a higher level. We just need to be selective in which apps we promote.

The future of Danish hospitals. It will be interesting to see just what new “technological solutions and new work flows” they will implement.

Public trust and research on personal health data

To protect patients against overzealous researchers, the Declaration of Helsinki was adopted by the 18th World Medical Assembly in 1964. It is a tool for preventing mistakes such as the Tuskegee Study

Currently, there is an increasing disregard for the Helsinki declaration. In my opinion, it is partly due to the blurred line between marketing and scientific research. Companies such as Facebook and OK Cupid admit to overstepping ethical, but not legal, boundaries. I believe it is safe to assume that other social companies apply similar methods for marketing and research. As Big Data simplifies data gathering, healthcare facilities are also employing some dubious research methods.

These actions erode public trust, patient rights and safety. Eventually, patients will resist supplying data for research purposes. This is unfortunate, as much can be learned from our current and future healthcare databanks. Research on public data and EHRs need to be grounded on informed consent, be anonymized, and securely stored. Underprivileged individuals should not be tempted into donating their data or tissue to research. A public discussion amongst researchers, doctors, computer engineers, government officials, bioethicists, and patient advocacy groups, should preemt any data gathering endeavors in order to prevent tainting the reputation of health data research.

The Nordic countries are well suited for pioneering health data research, because of their longstanding democratic governments, inclination towards open debate, and homogenous, nationalized healthcare systems. The NOKLUS study in Norway shows that an ethical approach is feasible. The challenge is to apply the same principles on a larger scale.

The predictions are impressive, but it’ll be interesting to see what the future will actually bring. Personally, I believe most people will simply use their smartphones, which will be specked out with additional health sensors by 2018.